Colton A.
Arkansas
Birth Date - June 13, 2014
Main Diagnosis - Muenke Syndrome
THEME: Patriotic
mailed 4/11/2016
Colton's Story
We had suspicion from before Colton was born he would be a cranio kid like his sister. We got confirmation the day after he was born. Since then, he has had one major surgery in Dallas with the same team who has worked on my daughter. Since March of 2015, we have added Chiari Malformation, confirmed Muenke Syndrome, Basillar Invagination and a syrinx on his spine. Colton also has developmental delays and gets ST, OT and PT.
June of this year (one year after his first surgery) Colton will return to Dallas for his second brain surgery.
