Emerson H.
California
Birth Date -   February 12, 2011

Main Diagnosis -    Hypoxic Ischemic Encepalopathy

THEME:    "Bug Babies"
Emerson's Story

On Feb. 12, 2011, Emerson Grace (AKA Emmy) came into the world by crash C-section. She was not moving or breathing, she was silent and she had no color, but she had a faint heartbeat. After six weeks in the NICU, she finally came home. We weren't given much information, other than we'd have to "wait and see". Unfortunately, it was evident from the very beginning that she hadn't escaped unscathed.

We still aren't certain of her future, but we know where she has been and how far she's come. Although a baby's brain is very resilient, she has suffered significant setbacks. But she is working very hard to progress and has captured our hearts and the hearts of many others along the way.

Emmy is one hard working little girl and keeps a crazy schedule. . .vision therapy, occupational therapy, physical therapy, developmental therapy, feeding therapy and a slew of other alternative therapies are all part of every week. . .she usually has 12-15 hours of therapy every week. She's endured multiple hospital stays in her short life and has a team of doctors including a Pediatrician, a Pulmonologist, two Neurologists, a Gastroenterologist, an Otolaryngologist, an Opthamologist, an Audiologist, a Urologist and an Orthopedist.

Her current diagnoses include: Hypoxic Eschemic Encepalopathy (HIE), Cerebral Palsy (CP), Epilepsy, Cortical Vision Impairment (CVI), Chronic Lung Disease, Dysphagia, Failure to Thrive (FTT) and GERD.
"Thank You"

I just wanted to let you know Emerson's quilt arrived safe and sound. It's even better in person and totally gave me goosebumps reading all of the names of the ladies who stitched the squares and their locations.  What a really special treasure you have bestowed on us!  I'm teary just writing you and trying to express my gratitude.