Hailey R.
Illinois
Birth Date - January 1, 2010
Main Diagnosis - Craniosynostosis
THEME: "Winnie the Pooh + Friends"
Hailey's Story
Hailey was diagnosed with Metopic craniosynostosis in May 2010. She underwent her first CVR at 6 months of age, her second at 18 months, and her third in August 2013 at 3 1/2. We continue to wait to see what she does in growth etc. The journey has been heartbreaking for her entire family and the "unknowns" can be unbearable most days.She was recently diagnosed with left global low slowing, ADD, ADHD and SPD. She continues private therapies in ST, OT, and PT. She has an amazing spirit but has become weary of doctors as of late. She has had and still undergoes many testings.
