Harper S.
Texas
Birth Date -   April 8, 2013

Main Diagnosis -   Spinal Muscular Atrophy

THEME:   RELIGIOUS THEMED QUILT (Suitable for a 2 year old) TO INCLUDE HYMNS, PSALMS, and SCRIPTURE
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Harper's Story

October 23, 2013 marked a new journey for our family. Our sweet precious Harper was diagnosed with Spinal Muscular Atrophy.



Around 5 months old, we noticed a change in Harper's development. She wasn't kicking her legs and moving them around as much as she used to, and she had lost the ability to pick up her head while on tummy time. We took our concerns to her pediatrician and a couple weeks later, our fear was confirmed. Harper was diagnosed with SMA Type 1. We were sent home with the only instruction to "watch" her. Katy Perry's song "Roar" quickly became Harper's theme song. That, along with prayer and the many supporters we have, we've been able stay positive, faithful, and strong. We have been "watching" Harper for the last several months progress to smiling, laughing, reaching for toys, baby babbles, slightly sitting to sitting up for short periods, and now sitting for longer periods unassisted. Then at her January 15, 2014 neurologist check-up, we tearfully "watched" as her doctors changed her to SMA Type 2 due to her ability to sit. Although we still have complications to watch out for, we have so much faith that sitting isn't the only thing we are going to watch our little fighter do! This is HARPER'S ROAR!!!
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