Stacey Q.
California
Birth Date - Octrober 10, 2001

Main Diagnosis -    Neurodegenerative Disease Unspecified

THEME:    PRECIOUS MOMENTS (see acceptable patterns below)

PM’s (pastel colors) that are GIRLS (NO BOY PATTERNS), PM Angels, PM with mom, dad, and a baby, and can include an Animal with a PM – if the animal is on this list: elephant, cat, dog, lamb, panda, butterfly, horse, unicorn or bunny – no exceptions or substitutions.  Don’t just stitch an animal – it has to be a PM WITH an animal.

 
Quilt Deadline: 10/15/15
Stacey's Story

Stacey is a very special little girl. She is the only one in the world with her combination of conditions, diseases and syndromes. She has had a tough go at life, but continues to let her light shine. 
One of our favorite songs that we sing to her is "You Are My Sunshine" she is daddy’s girl and I am her sunshine. We love and adore her. 

We believe in prayer and the power of it, the more people who see and read about her the better. And the more prayers the better. 


Diagnoses: 9p-23 Chromosome deletion (Alfi's syndrome), Failure to Thrive, Congenital Cataract, Hashimoto's Thyroiditis, CNS and Peripheral Dysautonomia with POTS, Gastroparesis, Neuropathy, Juvenile Arthritis, Thinning of the Corpus Collasum, Thinning White Matter, Cerebral Hemorrhage, Intractable Epilepsy, Myelopathy, Scoliosis, OCD Anxiety Disorder, GJ tube dependent and Broviac IV dependent.