Birth Date - December 7, 1998
Main Diagnosis - Ehlers Danlos, POTS, Dysautanomia, Chronic Fatigue Syndrome
THEME: Light Houses
Steven's Story
Steven is 16 years old and has been diagnosed with Dysautonomia, Autonomic Neuropathy, Ehlers Danlos Syndrome, Chronic Psdu Intestinal Obstruction with a cecostomy, Chronic Fatigue Syndrome and POTS. He has struggled his entire life with health concerns.
Steven has missed the majority of his education and is homebound. He attends 1-3 hours of school a week when he can and does online classes from home. He loves science and computers! He loves music and is teaching himself to play the guitar. there is a constant stream of friends coming over to hang out with him to offer him support by watching movies and playing video games. He tires easy and requires 12-15 hours of sleep a day.
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"Thank You"
"Thank you Love Quilts for the BEAUTIFUL quilt! The stitching is amazing! What love!!!!!!"